Too long, too much....

It's been too long since I posted a message and now I am overwhelmed with too much to report.
I'm going to have to take this in little pieces I think. In the days and weeks to come I will share with you information from the Myositis Walk and Myositis Awareness Day, the trip to St. Louis and the National Myositis Conference (this will surely be a number of posts as there is so much to share about the experience), an update from the doctor (going tomorrow morning), etc...

Right now I wanted to share with you that the reduction in prednisone is not going smoothly. I tapered down to 10 mg on Thursday and it's either that or the laps around the track last Sunday or the significant change in my routine over the weekend or a combination of all of these things that is knocking me over. As I am typing I notice the burning/aching in the muscles in my arms and neck. I have had to nap nearly every day for the past week. I am hoping to find the strength and patience to stick with the tapering schedule. OK...going to rest for 20-30 minutes and then will start dinner.
I will be back sooner rather than later.
Kris

One month down

It's been just about a month since I started cytoxin. I don't feel any different. This week I did get the OK to start tapering my prednisone and that is a good thing. For past two days I have been taking 15 mg, down from 20. Now I don't know if it's the bike ride I took last night or the reduction in prednisone but I am significantly more achey than I have been.

Over the past two weeks I have set a goal for myself to exercise 150 minutes each week. Last week I fell short by a half hour. This week......success. I have 17 minutes left to go and I plan to complete that this morning. My reward is a pedicure and my toes are so excited.



I am counting down now for the days until the Myositis Walk...just 8 days to go. So far I have about 65 people registered to walk. My goal is to have 100. Please pray for fair weather. By that mostly I am hoping that it doesn't rain.



Somehow, it will all come together.