Wednesday, October 28, 2009

Quote from Laurie's facebook page...

The best things in life are unexpected - because there were no expectations.


and a note from my sister-in-law Kithy...
Kithy is going to the Packer/Viking game and she hopes that Brett throws a few completions to the old Green and Gold and that the Vikings lose of course.

:0)

Update....

Just a quick note to let you know that the doctor was very pleased with how I looked and the strength tests were either unchanged or improved over my last visit.
I can now see her every FOUR months and have lab work every TWO months. This is a vast improvement over seeing her and having lab work done every month which is how it was in the beginning.
She also approved an increase to my work day and work week. I can now work a 7 hour work day and have an approved range of 25-30 hours per week. It's hard for both of us to move confidently to the next level as in the grand scheme of things, our formula is finally working.

I wish I had a lovely quote to share....let me bop over to my friend Laurie's facebook page and see what she has to share. I'll be back soon with one of hers.

Monday, October 26, 2009

Another month...

Hello friends,
I can hardly believe a month has passed without a post to my blog. For those of you that have been following my journey you know that means I must be feeling pretty good.
I do. I am feeling good.
There is a way of living that has been gone so long, I don't even know how to get back there.
How to go about each day, doing what needs to be done without fear of how I will feel tomorrow...
I tried this over the weekend and it went pretty well. I did rest for much of the day on Sunday, but I think that being out late on Saturday night and getting up early Sunday morning would probably make just about anyone need a rest on Sunday.

Tomorrow I have my next appointment with my rheumatologist. I plan to ask her if I can increase my work day from a maximum 6 hour day to 7 hours and/or from 25 hour work week to 30 hours a week.

I will keep you all posted on how that goes....

Other updates:
I have new job responsibilities effective today. My new job title is Retail Sales Coordinator.

I will begin volunteering with a group here in Milwaukee called "Making a Difference". I will be meeting with a local high school and helping the juniors learn about working with a budget, how a checking and savings accounts works and how to obtain and use credit wisely.

Just sent out a couple of emails to people with Myositis that have reached out to me and announced that the first WI Kit Group meeting will take place via conference call within the first two weeks of November.

Emma is practicing and practicing for the upcoming Midwest Oireachtas being held in Columbus, OH over the Thanksgiving weekend.

Jake is learning to read, loves lego's and recently joined Bill for his first cub scout meeting.

Bill is still amazing us with his cake creation hobby, and all the things he can accomplish on any given day for his family, our school district, work, church, etc...

Our lives are blessed.
I will post another message tomorrow and update you on my appointment. Thanks for checking in.

Kris