I have been following another blog for the past month or so.
I believe I have mentioned to you in my own past blog entries how I am amazed at the quiet ways God comes to us to offer his comfort and wisdom.
The day I was introduced to this blog was the same day I was quietly remembering the day we lost our own little one. I'm still not sure if there is a right way to remember this little angel but I believe God sent me the introduction to this new blog to bring me quiet comfort that day through the amazing life of another little girl. Her name is Zoe and her life is impacting the lives of people around the world.
Here is her family's blogspot address: www.batiansila.blogspot.com
I read a quote there today that I want to share with you...
“It is always the simple things that change our lives. And these things never happen when you are looking for them to happen. Life will reveal answers at the pace life wishes to do so. You feel like running, but life is on a stroll. This is how God does things.”
-Donald Miller
klb
Monday, May 26, 2008
Tshirt Update
Good Morning and Happy Memorial Day.
As of this morning I have sold 68 tshirts. I will organize the spreadsheet and submit the order this week. I have another runner who will wear my shirt and help raise awareness. It's really quite exciting. My sister Beth did a great job putting together a brochure for me. I will send them along to you when I send the tshirts and thank you notes out. I am really feeling good about the success of the campaign so far.
Speaking of feeling good...I am not feeling so good these days. Not terrible but my muscles are achy and tired and I feel like I am needing to rest all the time. I believe it is part of the tapering of prednisone that is causing this and I am just going to hang in there because I am quite sick of this drug and it's side effects.
On Friday night I had a great conversation with a woman by the name of Sherry. She is young and also diagnosed with an autoimmune disease (Rheumatoid Arthritis). I was amazed that many of the symptoms she experiences and frustrations of the treatment are the same as what I have been experiencing. I also realized how important this kind of support and understanding is. The Myositis Association has a KIT group program (KIT stands for Keeping In Touch). Meeting with Sherry inspired me to prayerfully consider leading a group like this in Wisconsin. I have thought of it on occassion before but it wasn't until speaking face to face with Sherry and hearing her experiences that it really hit home how powerful and positive this could be. I will finish with the tshirt/awareness campaign before I take anything new on but will let you know if I decide this is what I am going to do next.
Thank you to everyone who continues to send miles to me. I am not adding many of my own these days which makes getting yours even more important to me. Keep them coming.
I wish you all a wonderful memorial day.
Thank you for your continued support and interest in my journey.
Sincerely,
Kris Lane
As of this morning I have sold 68 tshirts. I will organize the spreadsheet and submit the order this week. I have another runner who will wear my shirt and help raise awareness. It's really quite exciting. My sister Beth did a great job putting together a brochure for me. I will send them along to you when I send the tshirts and thank you notes out. I am really feeling good about the success of the campaign so far.
Speaking of feeling good...I am not feeling so good these days. Not terrible but my muscles are achy and tired and I feel like I am needing to rest all the time. I believe it is part of the tapering of prednisone that is causing this and I am just going to hang in there because I am quite sick of this drug and it's side effects.
On Friday night I had a great conversation with a woman by the name of Sherry. She is young and also diagnosed with an autoimmune disease (Rheumatoid Arthritis). I was amazed that many of the symptoms she experiences and frustrations of the treatment are the same as what I have been experiencing. I also realized how important this kind of support and understanding is. The Myositis Association has a KIT group program (KIT stands for Keeping In Touch). Meeting with Sherry inspired me to prayerfully consider leading a group like this in Wisconsin. I have thought of it on occassion before but it wasn't until speaking face to face with Sherry and hearing her experiences that it really hit home how powerful and positive this could be. I will finish with the tshirt/awareness campaign before I take anything new on but will let you know if I decide this is what I am going to do next.
Thank you to everyone who continues to send miles to me. I am not adding many of my own these days which makes getting yours even more important to me. Keep them coming.
I wish you all a wonderful memorial day.
Thank you for your continued support and interest in my journey.
Sincerely,
Kris Lane
Tuesday, May 13, 2008
Miles to date....
In May I added some miles from my marathoning coworker and also added another person who is now training for the Chicago marathon, those two additions plus the continued efforts of my faithful weekly walkers has brought our total as of May 13th to 1993.57 miles. HOLY COW.
Over the past few days a couple people have asked why I want to continue to add walkers and miles now that we've made it to Denver.
Here's the reason....the more people I have emailing me their individual miles, the more people I know have been made aware of Myositis. Remember, this campaign is two-fold....research dollars and awareness. I am counting on a trickling sort of effect on many levels. Knowledge, Awareness, Research Dollars, Positive thinking followed by positive actions, etc.....
Feel free to ask your walking or biking partner to email miles to me as well. The journey is a long but beautiful one.
Have a great day.
Kris B
Over the past few days a couple people have asked why I want to continue to add walkers and miles now that we've made it to Denver.
Here's the reason....the more people I have emailing me their individual miles, the more people I know have been made aware of Myositis. Remember, this campaign is two-fold....research dollars and awareness. I am counting on a trickling sort of effect on many levels. Knowledge, Awareness, Research Dollars, Positive thinking followed by positive actions, etc.....
Feel free to ask your walking or biking partner to email miles to me as well. The journey is a long but beautiful one.
Have a great day.
Kris B
Tuesday, May 6, 2008
A few updates from the past week or so...
One of the most exciting things about the past week is the Physical Therapy. This is really a very different approach but so far I continue to feel GREAT at the end of each session. I have appointments scheduled on Tuesday and Fridays and the GREAT feeling lasts at least 24 hours. After last Fridays appointment I felt great until Sunday. When I evaluated everything I did when I felt GREAT, I realized that I didn't do such a good job at pacing myself. Pacing has become almost second nature to me but when I felt so good, I definitely wanted to make the most of it. I paid for it. The fatigue on Sunday, Monday and Tuesday was lousy. Now it's Tuesday evening and I feel really good after my PT today.
Another exciting thing...my employer is providing the opportunity for me to sell my myositis tshirts at work this summer, they will plan a casual day for the Friday before National Myositis Awareness day for people to wear the shirts to work and also provide a "Wellness Seminar" which will be a one hour presentation to employees of the bank. I will look for a professional to come in but if I am unable to find someone who has the time and is willing to talk for "free" then I will make the presentation myself. With that being said, I am open and actually hoping for your feedback. What have you learned by following this journey? What would you like to know more about? What's worth sharing again? Let me know if you have any thoughts on what would make a valuable presentation for my coworkers. You can either put it in the blog or you can email me directly at wbarger@wi.rr.com or my new email address that I set up for fundraising at beemarket@gmail.com . Thanks in advance for your thoughts on this subject.
OK, another exciting thing... Jake lost two teeth in one week and Emma competed in her first feis. A feis is an irish dance competition. She did a great job and received a third place medal.
Oh, it's getting close to bedtime for the kids so I better get going. I did want to mention how exciting it is to go to the mailbox everyday. I am on a roll and have received at least one order or donation every day for the past five days. What a blessing. I have had an inquiry from Long Island, NY and received order forms from MN, IL and WI so far. Keep the word out there and thank you for all your prayers, good thoughts, positive messages.
I really am blessed.
Good Night.
Kris B
Another exciting thing...my employer is providing the opportunity for me to sell my myositis tshirts at work this summer, they will plan a casual day for the Friday before National Myositis Awareness day for people to wear the shirts to work and also provide a "Wellness Seminar" which will be a one hour presentation to employees of the bank. I will look for a professional to come in but if I am unable to find someone who has the time and is willing to talk for "free" then I will make the presentation myself. With that being said, I am open and actually hoping for your feedback. What have you learned by following this journey? What would you like to know more about? What's worth sharing again? Let me know if you have any thoughts on what would make a valuable presentation for my coworkers. You can either put it in the blog or you can email me directly at wbarger@wi.rr.com or my new email address that I set up for fundraising at beemarket@gmail.com . Thanks in advance for your thoughts on this subject.
OK, another exciting thing... Jake lost two teeth in one week and Emma competed in her first feis. A feis is an irish dance competition. She did a great job and received a third place medal.
Oh, it's getting close to bedtime for the kids so I better get going. I did want to mention how exciting it is to go to the mailbox everyday. I am on a roll and have received at least one order or donation every day for the past five days. What a blessing. I have had an inquiry from Long Island, NY and received order forms from MN, IL and WI so far. Keep the word out there and thank you for all your prayers, good thoughts, positive messages.
I really am blessed.
Good Night.
Kris B
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