A week's worth of updates in one entry

Sorry for dropping the ball last week. Believe me, I thought of you often but my mind and energy were wrapped up in how I am going to use my diagnosis with Myositis to make a difference in someone else's life. I've written letters to three women who have inspired me along the way and hope that one of them might be able to share what they learned about fundraising so that I am not reinventing the wheel. Don't worry, the walking is going to continue and I am going to trek 1044 miles (as are you) but I am fairly certain I am going to sell tshirts too. I am waiting to hear back from the Myosistis Association with permission to use their logo. 100% of the profits will go toward my fundraising campaign. Did I happen to mention I'm shooting for a $10,000 goal now instead of $1044.00 For those of you who have already made a cash donation, I will send you a tshirt hot off the presses as my thank you. For those of you wondering how you can help....I will be selling tshirts for $25.00. You can buy one and wear it everywhere. In so doing, you will be helping me raise awareness and money for research. I also think the back of the tshirt is very inspiring so along with awareness and money for research you will be INSPIRING without having to say a word. The most cost effective way to do this (and raise the most money) would be to take orders (and payment) and then place the order once I have enough to offer a cost break.

OK, enough about that for now.

Here is an update of things I wanted to tell you last week:
Last Saturday night around 7:00 PM I went upstairs to give myself the first half of my methotrexate for the weekend. I took a syringe from the bag and it was HUGE. The needle was nearly three inches long and the barrel was the size of a sharpie marker. No thank you....after a moment of consideration and Bill suggesting that maybe I should just inject it half way in I decided I would pass and take my changes with a full dose the following day. In church on Sunday Emma snuggled in next to me and commented that I wasn't hot and sweaty. We both enjoyed that close moment and it only made it more special sharing it in church.
Sunday afternoon we took a family trip to Cabella's. The moment never to be forgotten from this adventure was Jake's overwhelming excitement over the fishing area. He loves fishing so you can imagine how the aquarium and the rows and rows of fishing poles and lures was amazing to him. Down one row he commented to us : "WOW this is paradise..." down another row a few minutes later he said "Mom, this must be a fisherman's heaven." Every day since then he has asked Bill when they could go back to "that store". Saturday they made the trip again and Jake has added yet another lure to his fishing box.
Wednesday morning we were met with a scare when Jake woke up and was crying because his legs hurt him so bad. He couldn't stand at the side of the bed and came down the stairs (because I can't carry him) on his bottom. You can only imagine how scared I was that one of my children could have this same muscle disease. I was terrified. Jake is fine. He did have sore legs for many days after that but it was actually a symptom of the virus that he was sick with the week before. A number of other children in his class and after school care program had the same leg aches. THANK YOU GOD.
Thursday afternoon Emma amazed me at swimming lessons. I usually spend that 40 minutes working out but this past Thursday I didn't have the energy. My little Emma bean swam nearly a mile. After class she told me she was exhausted but asked me if I would add that mile to my blog. My sweet girl....she is tracking miles for her mom. I AM BLESSED.
One last thing...Bill and I met with someone last week and before our meeting started he asked if he could share a prayer with us. It was very simple:

"Dear God, please give me the patience to tread water until I am strong enough to swim."
Isn't that just wonderfully simple. I can't tell you how many times I thought about that since last Monday but I can tell I wasn't in the pool. I applied it and shared it with others when the opportunity presented itself.

I've got to go. Tonight is BUNKO night with the ladies and I have dinner to start.

Thanks again for checking in. I will send out a mileage update for last week shortly.

Kris Lane

Make the most of every moment.